Ballinlough clubman Derek Lynch is taking part in a fundraiser for the Better Life for Livie campaign.
Last weekend saw 11 Meath GAA clubs come together along with Rory’s Stories to undertake a Solo Challenge to raise much-needed funds for Livie
On Saturday 11th July Derek will visit every club ground in Meath in 24 hours and kick a point or solo outside the ground while raising funds for little Livie Mulhern.
Weather permitting Derek will be accompanied by his son Tom (Tom's Walking Wish), Meath's number 1 supporter, on parts of the journey.
Livie (Olivia), who lives in Balrath Co. Meath, has been diagnosed with SMA , the same condition as Dan from the Do it for Dan campaign.
Little Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. There is no cure and Livie has its most severe type. Livie’s muscles used for activities such as crawling, walking, sitting up, moving her head, and even swallowing and breathing, are becoming progressively weaker and shrinking. Without any treatment, little Livie’s condition would continue to deteriorate and it would be unlikely that she would live past her 2nd birthday.
Treatment options for little Livie are very limited. The best hope for a better life for Livie is a once-off gene therapy called Zolgensma, which is currently only available in USA. It costs approximately US$2,100,000.
Derek's massive undertaking will get underway in the early hours of next Saturday morning.
You can donate directly to this very worthy cause by CLICKING HERETweet